Abstract
Introduction
Advance care planning is a cornerstone of holistic care in patients with dementia. I conducted a quality improvement project (QIP) in Musgrave Park Hospital on the Orthogeriatrics Ward. The QIP focused on advance care planning in patients with moderate to advanced dementia.
Method
The target cohort was post-operative fracture patients with a formal diagnosis of dementia. Patients with moderate to advanced dementia were identified using the clinical frailty scale. Once a patient was identified, I ascertained whether the patient had capacity. If the patient was not deemed to have capacity, questions were deferred to the next of kin (NOK). The patient or NOK was asked ‘if an ACP was in place?’ and if an ACP was not in place, they were the asked ‘if they were aware of what an ACP is?’.
Results
I collected data between 1st March 2023 and 1st April 2023. Eighteen patients were identified. No patients were deemed to have capacity and therefore, all questions were deferred to their NOK. No patients had an ACP in place and only one NOK was aware of what an ACP is.
Conclusion
The data collected showed that no patients had an ACP in place and that there was a significant lack of education regarding what an ACP is. This lack of understanding concerning what an ACP entails may be preventing ACPs from being completed in the community. I designed a leaflet which summarised the key aspects of advance care planning. These leaflets will be handed out to patients or their NOKs. I will follow up on these patients to see if education has led to an ACP being put in place.
Comments
Knowledge is power
Too often, I've looked after relatives as much as the patient who are 'stumbling in the dark', trying to find their way through their dementia journey with their person.
It's wonderful to have these discussions in advance in a calm manner where the person has time to go away and reflect (perhaps with others in the person's network) and make an informed decision around their person's wishes. Thank you