Abstract
Introduction: Frailty is a state of increased vulnerability to physiological stressors, which is associated with increased risk of adverse outcomes such as falls and delirium in older adults. For this patient group, healthcare decisions (as in whether to undergo elective surgery or continue a burdensome outpatient treatment) often have far-reaching consequences. Despite broad consensus that healthcare decision making should be a collaborative process, studies have shown frail older adults struggle to make healthcare choices and often do not feel fully involved in the decision-making process. We wanted to understand more about how frail older adults experience healthcare decision making, specifically whether they feel empowered to exercise autonomy. We also wanted to gather suggestions on how to improve the experience of healthcare decision making for this patient group.
Methods: We developed a questionnaire to assess frailty in older adults and gather data on healthcare decision making experiences. A pilot-study was undertaken to test questionnaire efficacy and accessibility. The questionnaire was distributed UK-wide to community groups. Participants completed the questionnaire independently and anonymously. Frailty was accessed based on responses to activities of daily living questions.
Results: 116 older adults completed the study, with 18 judged to be frail. 27.8% of frail adults felt never or usually not listened to by doctors, compared to 8.7% of non-frail adults. 94% of frail adults definitely or probably wanted to be involved in their treatment plans. 61.5% of frail adults wanted to see changes in how they were involved in healthcare decision making.
Conclusion: Most frail older adults want make healthcare choices, yet a significant minority do not feel listened to. Suggestions to improve healthcare decision making for frail older adults arising from this work include addressing concerns across repeated patient-doctor consultations and providing literature in appropriate language to read and digest between consultations.